Splaine Consulting Updates: May 2018

bruno-aguirre-456338-unsplashRecognizing a Critical Cohort in Hands-On Dementia Care
Kicking off on June 14th, this is the 41st year of National Nursing Assistants Week, and we’re eager to spread the word as nationwide, 4.5 million nursing assistants provide hands-on dementia care every day (source: National Network of Career Nursing Assistants). From assistance with bathing and dressing to help at mealtimes, these workers are integral to supporting all the activities of daily living (ADLs) for persons with dementia. This year’s theme: Creating a Community of CaringLearn more about the week’s activities here. Is there a nursing assistant who is caring for a person with dementia you know and love? Here are 50 ways to say thank you to these special caregivers.

Alzheimer’s Grants to States and Communities Now Open for Application
In late May, the Administration for Community Living announced the application deadline for states and communities seeking funding for the Alzheimer’s Disease Programs Initiative (ADPI) grants, which “promote the development and expansion of dementia-capable home and community-based service systems (HCBS). Learn more or apply here.

GDPR Compliance: Privacy Matters
In case you missed the announcement (posted on our social media networks and in this e-newsletter we sent), the Splaine Consulting team has updated our privacy policy to comply with new guidelines via the General Data Protection Regulations (GDPR), which went into effect May 25th.

WEAAD 2018 Webinar: Leveraging Resources to Prevent, and Stop, Elder Abuse
World Elder Abuse Awareness Day (June 15th) is fast-approaching, and organizations around the world are preparing accordingly. Launched by the International Network for the Prevention of Elder Abuse and the World Health Organization at the United Nations, WEAAD was established so global communities could “promote a better understanding of abuse and neglect of older persons.” 

Register here to participate in a webinar sponsored by the Elder Justice Initiative (EJI), Leveraging National Resources to Build Strong Support for Older Adults.
Date: 06/13/2018
Time: 4:00 pm – 5:30 pm ET
Speakers include: 
Lydia Chevere, Public Affairs Specialist, Social Security Administration
Aiesha Gurley, Aging Specialist, Office of Elder Justice and Adult Protective Services, U.S. Department of Health and Human Services
Susan C. Lynch, Senior Counsel for Elder Justice, U.S. Department of Justice
Julie Schoen, Deputy Director, National Center on Elder Abuse

 

ADI to Advocate for WHO Registration of Dementia Prevention Drugs
A year ago, Alzheimer advocates around the world celebrated a huge win in the form of the WHO Global plan on dementia, whose progress was recently measured in a new report issued by ADI (read it here). On the heels of this report’s release came a disappointing decision from France’s Ministry of Health and Solidarity: they will discontinue reimbursement of four Alzheimer drugs. See the response and advocacy actions planned by ADI regarding this decision.

NIH Summit Launches Alzheimer’s Research Recommendations
Find out what recommendations emerged from the National Institutes of Health’s 2018 Alzheimer’s Research Summit: “Path to Treatment and Prevention,” in this newly released summary from AlzForum

Nearly 100 published recommendations and sub-recommendations were discussed, which were then grouped by the summit’s 7 session titles:
  • Novel Mechanistic Insights into the Complex Biology and Heterogeneity of AD
  • Enabling Precision Medicine for AD
  • Translational Tools and Infrastructure for Predictive Drug Development
  • Emerging Therapeutics
  • Understanding the Impact of the Environment to Advance Disease Prevention
  • Advances in Disease Monitoring, Assessment, and Care
  • Building an Open Science Research Ecosystem to Accelerate AD Therapy Development

More Millennials Providing Dementia Care
A new report released by US Against Alzheimer’s, Youth Against Alzheimer’s, and  the USC Edward R. Roybal Institute on Aging focuses on a rapidly growing segment of caregivers — millennials. Recent reports estimate 25% of today’s caregivers are millennials, and this report suggests one in every 6 millennial caregivers is providing care and support for someone with Alzheimer’s or dementia. By discussing special challenges and considerations unique to these young carers — such as the emotional distress and interference with work — the report is “critical for framing policy and programming solutions.” Read it here.