What we’re doing, what we’re reading, and where we’ve been: it’s all here. Follow our Facebook & LinkedIn pages for updates, and forward this newsletter to friends and colleagues interested in all things Alzheimer’s. Thanks for keeping us in your inbox!
Happy Holidays from Splaine Consulting!
We hope you and yours are having a wonderful and warm holiday time!
Here are some tools and tips for making the holidays easier for people living with dementia and their care partners:
- Travel: Minimize luggage, let the airline know ahead of time that you have someone with you with dementia, avoid very crowded areas, know where there are hospitals in the area you are traveling to. Learn more here.
- Festivities: Update family members on how the person with dementia is doing before the festivities, familiarize the person with dementia with the guests beforehand by showing photos, sharing stories, or arranging a phone or Facetime chat prior to the celebration, prepare a quiet place away from the crowd if needed, factor the person’s routine into scheduling the celebration and if possible, plan the celebration around their routine. Learn more here.
Help Shape the Next HBI Road Map
Help Shape the Next HBI Road Map for Indian Country: Development f the next Road Map for Indian Country is underway. Here is an opportunity for your input. Provide feedback by January 17th, 2024. Your feedback will help shape the guide for the public health response to Alzheimer’s and dementia led by American Indian and Alaska Native communities. We are consulting on this project. Share your input here.
How to Be a Friend to Someone with Dementia
Learn how to support and connect with individuals living with dementia in this webinar! How to be a Friend to Someone with Dementia webinar will offer practical tips and strategies to support your loved ones with dementia. Learn how to communicate effectively, provide emotional support, and create a positive environment for them. Speaker, Mike Splaine, will share their knowledge and experiences, answering your questions along the way. Whether you’re a family member, caregiver, or simply interested in understanding dementia better, this event is for you! Don’t miss this opportunity to make a difference in someone’s life.
When: Tuesday, December 5th at 4:30pm EST / 1:30pm PST
Register for the free webinar here.
Approaching a Cure: FTD Genetics and Clinical Trials
In this webinar Approaching a Cure: FTD Genetics and Clinical Trials, Peter Ljubenkov, MD, behavioral neurologist at the University of California, San Francisco, will join AFTD’s Manager of Genetic Initiatives Kim Jenny, MS, LCGC, to delve into the genetics of FTD and
the clinical trials being done to find effective treatments, and explain why all impacted by FTD should consider genetic counseling. The webinar will describe the current clinical trial landscape for genetic FTD and explain how active clinical trials can inform future scientific
breakthroughs across the FTD spectrum.
Date: December 7th at 3-4 pm EST
Register for this free webinar here.
Living Alone & Connected!
Living Alone and Connected! is a private Facebook group for persons living alone with Alzheimer’s or another form of dementia. It is platform for members to receive emotional support, share questions or ideas, and find resources regarding their condition and lifestyle. The group is a unique online community is designed exclusively and thoughtfully for people who live alone with a dementia / Alzheimer’s. This is to ensure the privacy of our members, and to foster a safe, welcoming, and meaningful space to connect.
Join the Living Alone and Connected group!
The Living Alone and Connected public Facebook page is designed for those who care for people living alone with dementia. The Living Alone and Connected page provides resources to those family, friends, and caregivers who support those living alone with dementia.
Join the Living Alone and Connected page!
Living Alone and Connected! is hosted and moderated by Splaine Consulting. Living Alone and Connected! is supported in part by a cooperative agreement #90ADPI0067-01-00 from the Administration on Aging (AoA), Alzheimer’s Disease Program Initiative (ADPI) and cooperative agreement NVADPI0082 from the Neighbor Network of Northern Nevada and Nevada Senior Services.
In Memorium: Rosalynn Carter
Former first lady Rosalynn Carter died peacefully last month with her family by her side. She was 96 years old. She was diagnosed with dementia
earlier this year.
Rosalynn Carter was a humanitarian, champion for mental health, and caregiver advocate. President Jimmy Carter’s statement following her death: “Rosalynn was my equal partner in everything I ever accomplished, she gave me wise guidance and encouragement when I needed it. As long as Rosalynn was in the world, I always knew somebody loved and supported me.” Learn more about her legacy here.