What we’re doing, what we’re reading, and where we’ve been: it’s all here. Follow our Facebook & LinkedIn pages for updates, and forward this newsletter to friends and colleagues interested in all things Alzheimer’s. Thanks for keeping us in your inbox!
World Alzheimer’s Month – September
This year’s Alzheimer’s Disease International theme is ‘Never too early, never too late,’ will focus on risk factors and the critical role of risk reduction in delaying or potentially even preventing Alzheimer’s disease and other forms of dementia. Read more about this year’s theme.
If you would like to promote awareness around risk factors and risk reduction for Alzheimer’s, here are risk factor posters and images to share this month.
The Other Dementia Breakthrough – Comprehensive Dementia Care
In a recent article published in JAMA Neurology, authors David B. Reuben, Gary Epstein- Lubow, and Nora Super, outline the breakthroughs and improvements to comprehensive dementia care. In recent news, there has been much warranted attention on recent FDA approvals of new disease-modifying drugs for persons affected by mild cognitive impairment or early to mild dementia. But most persons living with Alzheimer’s and related dementias are not actually eligible to receive these drugs.
That is why it is important to also recognize the many benefits from comprehensive dementia care. Comprehensive care includes support from caregivers, ongoing care plans, psychosocial interventions, self-management, medication management, treatment of related conditions, coordination of care, and advance care planning. Learn more about comprehensive dementia care and access the full text here.
Expanding Dementia Capability in Indian Country
Join the National Alzheimer’s and Dementia Resource Center (NADRC) for “Expanding Dementia Capability in Indian Country: A Case Example from Inter Tribal Council of Arizona, Inc (ITCA)” webinar. The webinar will be held Wednesday, September 20, 2023 | 3:00-4:00 PM ET.
The webinar will highlight actions take to address the limited dementia services in tribal communities. During this webinar, participants will hear about how more services and supports are being deployed to meet the needs of tribal community members.
Representatives from the ITCA will describe how, through their ADPI project, they are empowering tribal staff and community members to become involved in providing dementia education and awareness in their communities. Register here.
Splaine Consulting has many connections and consulting engagements in the American Indian communities. If you work in those communities, we would be glad to connect to work with you.
Call for Video Messages for Age With Rights Campaign
The Global Alliance for the Rights of Older People are calling on you to record short video messages in support of a new UN convention on the rights of older people.
These videos will be promoted on social media as part of the Age With Rights campaign action around the UN Human Rights Council session and the UN General Assembly in September, and the International Day of Older Persons on October 1st. Find the campaign video guide here.
AlzStories Video Series
UsAgainstAlzheimer’s has kicked off their AlzStories Video
Series, which demonstrates the Alzheimer’s journey from people who are living it firsthand. You can hear from the
patients, caregivers, and families most directly impacted by Alzheimer’s. Hear their impactful stories.
ADI 2024 Abstract Submissions Open
Abstract submissions are open for the Alzheimer’s Disease International (ADI) 36th global conference, taking place in April of next year in Kraków, Poland and online. The global conference will be shaped around the action areas of the WHO Global Action Plan on
dementia. ADI welcomes both scientific and non-scientific abstracts on a range of topics, including but not limited to research, care, technology and innovation. The deadline for abstract submissions is September 29th 2023. Learn more about abstract submissions here.
Online Community for People with Dementia who Live Alone – Living Alone & Connected!
Living Alone and Connected! is a private Facebook group for persons living alone with Alzheimer’s or another form of dementia. It is platform for members to receive emotional support, share questions or ideas, and find resources regarding their condition and lifestyle. The group is a unique online community is designed exclusively and thoughtfully for people who live alone with a dementia / Alzheimer’s. This is to ensure the privacy of our members, and to foster a safe, welcoming, and meaningful space to connect.
Join the Living Alone and Connected group!
We also have – Living Alone and Connected, a public Facebook page for those who care for people living alone with dementia. The Living Alone and Connected public Facebook page provides resources to those family, friends, and caregivers who support those living alone with dementia.
Join the Living Alone and Connected page!
Living Alone and Connected! is hosted and moderated by Splaine Consulting. Living Alone and Connected! is supported in part by a cooperative agreement #90ADPI0067-01-00 from the Administration on Aging (AoA), Alzheimer’s Disease Program Initiative (ADPI) and cooperative agreement NVADPI0082 from the Neighbor Network of Northern Nevada.