What we’re doing, what we’re reading, and where we’ve been: it’s all here. Follow our Facebook & LinkedIn pages for updates, and forward this newsletter to friends and colleagues interested in all things Alzheimer’s. Thanks for keeping us in your inbox!
Alliance to Improve Dementia Care
The Alliance to Improve Dementia Care brings together a multi-sector coalition of leaders to advance timely detection, access to treatment
and coordinated care, and health equity for people at risk for and living with dementia and their caregivers. Through expert workgroups, convenings, and collaborative initiatives, the Alliance amplifies and promotes the adoption of proven solutions and promising innovations.
Through working groups, roundtables, and monthly meetings our members engage in crosssector collaboration to improve brain health and dementia care. We are proud to announce that owner and principal of Splaine Consulting, Mike Splaine, has recently been accepted as a new member to the Alliance to Improve Dementia Care!
Online Community for People with Dementia who Live Alone
Living Alone and Connected! is a private Facebook group for persons living alone with Alzheimer’s or another form of dementia. The group is a platform for members to receive emotional support, share questions or ideas, and find resources regarding their condition and
lifestyle. Living Alone and Connected regularly hosts educational and social virtual events.
Join or share Living Alone and Connected!
For those who care for people living alone with dementia, the Living Alone and Connected public Facebook page provides resources to those family, friends, and caregivers who support those living alone with dementia.
Follow the Living Alone and Connected page!
Living Alone and Connected! is hosted and moderated by Cognitive Solutions, LLC. Living Alone and Connected! is supported in part by a cooperative agreement #90ADPI0067-01-00 from the Administration on Aging (AoA), Alzheimer’s Disease Program Initiative (ADPI) and cooperative agreement NVADPI0082 from the Neighbor Network of Northern Nevada.
World Health Organization’s New Framework
The new WHO Framework outlines how to improve engagement of people living with noncommunicable disease (NCD) and Mental Health and Neurological Conditions and ensure better policies, programmes and services.It recognises the value and importance of lived experience and promotes the incorporation of a rights-based approach to policy development, planning and programme implementation. Learn more here.
The NGO Committee on Ageing – OEWGA
OEWGA (The Open-Ended Working Group on Ageing) is the working group on the Human Rights of Older Persons, established by the General Assembly. The working group will consider the existing international framework of the human rights of older persons and identify possible gaps and how best to address them, including by considering, as appropriate, the feasibility of further instruments and measures.
Forward with Dementia
Forward with Dementia seeks to change the narrative of ‘there is nothing that can be done’ to one that reinforces the strengths people living with dementia have. The website was created by an international consortium of people living with dementia, care partners, clinicians, and researchers to challenge negative stereotypes about living with dementia. The website’s resources are aimed to educate and motivate people living with dementia and their care partners to lead fulfilling lives with dementia. Learn more here.
Dementia Caregiver Poet
Author, poet, daughter, caregiver and advocate; Frances Kakugawa shares her experiences to help others learn about Alzheimer’s disease. In 1999, her mother was diagnosed with Alzheimer’s and Frances became her primary caregiver. Now, as the creator and facilitator of a poetry writing support group, Frances wants to change how others experience caregiving by exploring compassion and dignity through creative writing. Learn more here.
Cognitive Benefits of Reading
Senior Housing Net offers a reading benefits guide for seniors. The top benefits of reading for older adults include: improved memory and cognitive function, increased
empathy, better sleep, improved focus, reduced stress, and potential of delayed onset of dementia.
Additionally, libraries can help seniors by providing opportunities for social connection in free programs and book clubs, and entertainment and recreational activities. Learn about all the joys of reading and how to become a more avid reader HERE.